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121Aging Biotech

AKC Canine Health Foundation

1995Funds peer-reviewed research and training grants, shares research findings with veterinary and dog communities, and supports comparative and One Health studies across the canine lifespan.Raleigh, North CarolinaFounded by the American Kennel Club but established as an independent nonprofit; its aging portfolio includes Dog Aging Project-linked work and canine cognitive-dysfunction research.

Canine health research, including a dedicated program on the biology of aging, older-dog health, cognitive dysfunction, and diseases and conditions associated with aging.

Amyloidosis Foundation

2007Provides annual grants for early-career basic biomedical and clinical researchers, travel grants, patient support, professional education, and amyloidosis awareness programs.Clarkston, MichiganFormed in 2007 by the merger of the Amyloidosis Research Foundation and Amyloidosis Support Network; its research program supports early-career investigators studying systemic amyloidosis.

Systemic amyloidosis, including protein misfolding, amyloid formation and deposition, proteostasis, biomarkers, organ damage, and therapeutic development.

Ara Parseghian Medical Research Fund

2016Runs a competitive international grant program, supports gene-therapy, newborn-screening, biomarker, clinical-endpoint and small-molecule initiatives, and convenes collaborative NPC research through Notre Dame.Notre Dame, IndianaThe current Notre Dame fund was established in 2016 to carry forward the work and grantmaking of the independent Ara Parseghian Medical Research Foundation launched in 1994.

Niemann-Pick disease type C, a lysosomal cholesterol-trafficking and storage disorder with progressive neurodegeneration.

Autophagy, Inflammation and Metabolism Center

A University of New Mexico Center of Biomedical Research Excellence that supports research projects, pilot awards, junior-investigator development, scientific exchange, and shared autophagy and metabolism core facilities.Albuquerque, New MexicoBased in the University of New Mexico School of Medicine's Department of Molecular Genetics and Microbiology and supported through NIH COBRE grant P20GM121176.

Fundamental and translational autophagy research and its intersections with inflammation, metabolism, cell and tissue homeostasis, and disease.

Barth Syndrome Foundation

2000Funds and facilitates basic, translational, and clinical research; connects families, clinicians, and scientists; maintains medical and educational resources; and supports participation in research.Larchmont, New YorkWorldwide patient and research organization dedicated specifically to Barth syndrome, with research grants spanning underlying biochemistry, genetics, disease models, natural history, and treatment development.

Barth syndrome, an inherited mitochondrial disorder involving cardiolipin remodeling, cardiomyopathy, skeletal-muscle weakness, neutropenia, growth delay, and metabolic dysfunction.

Batten Disease Support, Research, and Advocacy Foundation

1987Funds and facilitates research, coordinates a global research initiative, provides family support and education, builds scientific and patient networks, and advocates for treatments and policy change.Gahanna, OhioCurrent name expands the former Batten Disease Support & Research Association identity to state its support, research, and advocacy roles explicitly.

Batten disease and neuronal ceroid lipofuscinoses, inherited lysosomal storage disorders characterized by intracellular lipopigment accumulation and progressive neurodegeneration.

Bloom Syndrome Association

Maintains an international patient community and registry, develops patient-centered research priorities, convenes a research council, provides education and support, and funds seed research.Its SECURE research strategy prioritizes safer care, effective treatments, natural-history evidence, a global registry, gene-therapy and genome-editing research, and patient partnership.

Bloom syndrome, a BLM helicase and DNA-repair disorder marked by genomic instability, growth restriction, immune problems, and elevated cancer risk.

BrightFocus Foundation

1973Awards peer-reviewed grants worldwide for early-stage basic, translational, and clinically oriented research through three specialized programs and trains early-career brain and vision scientists.Clarksburg, MarylandOperates the Alzheimer's Disease Research, Macular Degeneration Research, and National Glaucoma Research grant programs.

Research on Alzheimer's disease and related dementias, age-related macular degeneration, and glaucoma, spanning disease mechanisms, diagnostics, prevention, and treatments.

California Institute for Regenerative Medicine

2004A public grant-making agency that supports discovery, preclinical, and clinical research, shared infrastructure, workforce training, manufacturing, and patient-access programs; it does not conduct the funded research itself.CaliforniaCreated by California voters through Proposition 71; it is a taxpayer-funded public agency rather than an independent nonprofit charity.

Regenerative medicine, stem-cell research, and cell and gene therapy development for diseases with unmet medical needs.

CECAD Cluster of Excellence

2007Multidisciplinary basic and translational research integrating cellular stress, organelle quality, genome stability, metabolism, inflammation, inter-tissue signaling, and environmental effects.CologneUniversity of Cologne cluster supported by the German Excellence Initiative with university-hospital, Max Planck, and DZNE partners.

Molecular and cellular mechanisms of aging and aging-associated metabolic, cardiovascular, renal, cancer, neurodegenerative, and other diseases.

Cell Stress Society International

1999Advances basic, translational, and interdisciplinary research through international symposia, its journal Cell Stress & Chaperones, scientific collaboration, mentoring, awards, and trainee support.A membership society focused on stress and chaperone biology; its proteostasis relevance includes Hsp90, Hsp70, co-chaperones, protein-folding stress, and chaperone-based therapeutic research.

Cellular and environmental stress responses, molecular chaperones, heat-shock proteins, protein folding, and proteostasis in health and disease.

Club Francophone de l'Autophagie

2011Connects French-speaking autophagy laboratories, organizes scientific meetings, maintains research and methods resources, supports trainee participation, and awards travel grants and a thesis prize.France and the French-speaking research communityA member association and research network rather than a university institute or independent grant-making foundation.

Autophagy research, including autophagy mechanisms, physiology, aging, neurodegeneration, infection, immunity, metabolism, and disease.

Cure Parkinson’s

2005Funds international preclinical and clinical disease-modification projects through a quarterly grant program and advances prioritized candidates through its international Linked Clinical Trials initiative.LondonCure Parkinson’s is the operating name of The Cure Parkinson’s Trust; its grants focus on interventions intended to slow, stop, or reverse Parkinson’s rather than symptomatic relief alone.

Disease-modifying Parkinson's research, including cellular waste disposal, protein aggregation, oxidative stress, mitochondrial function, and regenerative approaches.

Cure Sanfilippo Foundation

Funds and builds research collaborations across gene therapy, enzyme replacement, substrate reduction, stem-cell approaches, and other experimental avenues while supporting affected families.Columbia, South CarolinaFamily-led charity supporting multiple investigational approaches to restoring lysosomal function and treating Sanfilippo syndrome.

Research and therapeutic development for Sanfilippo syndrome, a lysosomal storage disorder also known as mucopolysaccharidosis type III.

Cure VCP Disease

2018Funds research, maintains a patient registry and research network, supports natural-history and biospecimen studies, convenes scientific meetings, and provides standardized preclinical assays and disease models for therapy development.Warner Robins, GeorgiaIts preclinical toolbox includes autophagy-flux, protein-unfolding, motor-neuron-survival, patient-derived cell, organoid, and animal-model resources for VCP research.

VCP-associated multisystem proteinopathy affecting muscle, bone, brain, and peripheral nerves, with relevance to protein degradation, autophagy, endoplasmic-reticulum quality control, lysosomal function, and mitochondrial homeostasis.

CurePSP

1990Funds New Investigator and Enterprise research grants, student fellowships, biomarker development, genetics research, scientific meetings, and an international clinical Center of Care network.New York, New YorkIts research grant priorities explicitly include autophagy and proteostasis, tau strains, lysosomal biology, epigenetics, cell replacement, biomarkers, and proof-of-concept clinical trials.

Progressive supranuclear palsy, corticobasal degeneration, and multiple system atrophy research, including tau biology, autophagy, proteostasis, lysosomal biology, epigenetics, biomarkers, and regenerative approaches.

European Research Institute for the Biology of Ageing

2013Multidisciplinary laboratory research using model systems and technology platforms to understand why cells and tissues lose function with age and to identify strategies against age-related disease.GroningenA research unit within UMCG and the University of Groningen ecosystem rather than an independent charity.

Fundamental mechanisms of cellular and tissue aging, including protein aggregation and proteostasis, stem-cell aging, senescence, DNA replication and repair, genome stability, gene regulation, and metabolism.

EveryCat Health Foundation

1968Peer-reviewed research grants, new-investigator awards, disease-specific funds, research summaries, education, and global support for academic, veterinary-practice, and industry investigators.Wyckoff, New JerseyFounded as Winn Feline Foundation and renamed EveryCat Health Foundation in 2021; current aging grants include blood mitochondrial and antioxidant biomarkers and feline cognitive dysfunction.

Feline health research, including mitochondrial and antioxidant biomarkers of aging, cognitive dysfunction, geriatric care, and age-related disease.

Friedreich's Ataxia Research Alliance

Funds competitive basic, translational and clinical grants; develops shared models, biorepositories, biomarkers and endpoints; coordinates global clinical infrastructure; convenes scientific forums; and supports investigator training.Current grant mechanisms span general research, cardiac disease, translational work, research collaboration, clinician-scientist development, postdoctoral and graduate awards, and targeted biomarker requests.

Friedreich's ataxia, a frataxin-deficiency disorder involving mitochondrial iron-sulfur-cluster biology, oxidative stress, neurodegeneration, cardiomyopathy, skeletal-muscle impairment, and diabetes.

Grey Muzzle

2008Makes grants to animal-welfare nonprofits, collects program data, tests and shares senior-dog service models, and supports veterinary care, adoption readiness, foster care, hospice, and owner-retention programs.Raleigh, North CarolinaA grantmaker supporting senior-dog welfare programs, with applied service evidence and outcomes for at-risk older dogs.

Welfare, medical access, adoption, shelter diversion, and long-term home retention for senior dogs, with national data collection on older-dog needs and outcomes.

Harvard Stem Cell Institute

2004Coordinates research faculty and laboratories across Harvard schools, centers, teaching hospitals, and partner organizations; supports shared research resources, collaborations, disease programs, and translation toward the clinic.Boston, MassachusettsA university-wide research network rather than a separate independent charity; donations are made to the President and Fellows of Harvard College for HSCI.

Stem-cell biology and regenerative medicine, including how aging and fibrosis affect disease, tissue repair, and therapeutic development.

Huntington’s Disease Foundation

Funds research grants, postdoctoral fellowships, career-advancement awards, and large collaborative Transformative Research Awards, guided by an international scientific advisory board.New York, New YorkFormerly the Hereditary Disease Foundation; its current funding programs include work on disease mechanisms, therapeutics, and somatic repeat instability in Huntington's disease.

Huntington's disease mechanisms and therapeutics, including somatic CAG-repeat instability, protein aggregation, neuronal vulnerability, gene regulation, and related neurodegeneration.

Institute of Molecular Biology

2011Independent basic research groups combine molecular, cellular, biophysical, and computational approaches with shared genomics, proteomics, microscopy, and other core facilities.MainzResearch themes include genome stability, telomere biology, DNA repair, epigenetics, chromatin, proteostasis, protein quality control, and phase separation in aging and age-related disease.

Molecular mechanisms of aging, development, and disease, with emphasis on gene regulation, epigenetics, DNA repair, genome stability, telomere biology, and proteostasis.

International Registry of Werner Syndrome

Provides molecular diagnosis, collects clinical and pedigree data, banks DNA and cryopreserved cells, identifies WRN and other progeroid-syndrome variants, and shares de-identified materials with qualified researchers.Seattle, WashingtonAn academic registry and biospecimen repository housed in the University of Washington Department of Laboratory Medicine and Pathology, rather than an independent nonprofit corporation.

Werner syndrome and atypical segmental progeroid syndromes involving WRN helicase, genome maintenance, premature age-related disease, cancer, atherosclerosis, diabetes, osteoporosis, and cataracts.

Masonic Institute on the Biology of Aging and Metabolism

University research teams use cellular and mouse models, specialized genome-instability resources, drug development, and human clinical studies to test interventions intended to extend healthspan.University of Minnesota Medical School institute studying how the hallmarks of aging can be manipulated, including senolytic interventions and DNA-repair-deficient models.

Fundamental and translational geroscience spanning the hallmarks of aging, senescence, genome instability, metabolism, inflammation, and age-related disease.

Max Planck Institute for Biology of Ageing

Interdisciplinary basic research using model organisms, patient samples, long-lived families, core facilities, and collaborations that bridge laboratory and clinical research.ColognePart of the independent nonprofit Max Planck Society and the Cologne aging-research network with CECAD and university-hospital partners.

Fundamental molecular, physiological, and evolutionary mechanisms of aging, including mitochondrial proteostasis, genome stability, metabolism, and neurobiology.

MitoAction

2005Free patient and caregiver support, expert education, outreach, advocacy, clinical-research initiatives, community aggregation, and engagement with academic and industry therapeutic developers.Began as the Mitochondrial Disease Action Committee and adopted the MitoAction name in 2008; its remit centers on quality of life and practical support alongside clinical-research engagement.

Primary and secondary mitochondrial disease across children and adults, including clinical care, daily functioning, patient experience, and therapeutic-development readiness.

Morris Animal Foundation

1948Funds peer-reviewed animal-health studies worldwide and directly operates the longitudinal Golden Retriever Lifetime Study with recurring owner, veterinary, and biospecimen data collection.Denver, ColoradoIts Golden Retriever Lifetime Study follows a large canine cohort and makes longitudinal data and biospecimens available for research on cancer, disease risk, biomarkers, and the life course of aging in dogs.

Health and healthy longevity of companion animals, horses, and wildlife through research on cancer, chronic disease, infectious disease, genetics, environmental exposures, and other causes of morbidity and mortality.

MRC Mitochondrial Biology Unit

2009Multidisciplinary basic and translational research that connects biochemical mechanisms, cellular and organismal models, human mitochondrial disease, therapeutic development, and clinical collaboration.CambridgeA University of Cambridge department whose present MRC Mitochondrial Biology Unit identity dates from 2009; its groups include mitochondrial genome engineering and PINK1/Parkin mitophagy research.

Mitochondrial biology in health, aging, and disease, including mitochondrial genetics, oxidative phosphorylation, dynamics, mitophagy, metabolism, reactive oxygen species, and neurodegeneration.

National MPS Society

Competitive research grants, scientific collaboration, clinical-trial information, family assistance, education, national conferences, awareness, and policy advocacy.Durham, North CarolinaIts research program supports multiple grant tiers, early-career investigators, translational work, analysis of biospecimens and data, and clinical consensus projects across MPS and mucolipidosis.

Mucopolysaccharidoses and mucolipidoses, lysosomal storage disorders that affect the nervous system, skeleton, connective tissue, cardiopulmonary function, and other organs.

Osteogenesis Imperfecta Foundation

1970Funds postdoctoral research fellowships and other OI studies, maintains a patient registry and clinic directory, shares research opportunities, convenes professional and family meetings, and provides education and support.Gaithersburg, MarylandIts Michael Geisman Fellowship Grant supports postdoctoral investigators working on OI-relevant projects and building expertise in OI research.

Osteogenesis imperfecta and related collagen and bone-matrix disorders, including skeletal fragility, connective-tissue biology, musculoskeletal function, and clinical management.

Riaan Research Initiative

2021Funds and coordinates translational research, including CSA gene-replacement development, drug-repurposing screens, patient registry infrastructure, preclinical studies, manufacturing, and regulatory work.New York, New YorkThe organization funded the CSA/ERCC8 AAV9 program from preclinical work through manufacturing and regulatory review; its June 2026 report records a first individual administration without establishing wider clinical efficacy.

Cockayne syndrome, a transcription-coupled DNA-repair disorder caused principally by ERCC8/CSA or ERCC6/CSB variants and associated with childhood neurodegeneration and segmental premature-aging features.

Sam and Ann Barshop Institute for Longevity and Aging Studies

2001Basic, clinical, and population research supported by NIH aging centers, the Interventions Testing Program, training programs, and an on-site clinical research unit.San Antonio, TexasUT San Antonio institute hosting NIA-supported Nathan Shock, Claude D. Pepper, population-aging, and Interventions Testing Program activities.

Basic biology of aging, translational geroscience, age-related disease, interventions, and healthy longevity.

Scleroderma Research Foundation

1987Funds peer-reviewed basic, translational and clinical research; recruits investigators from fibrosis, immunology and genetics; supports longitudinal registries; and runs collaborative platform-trial and scientific-workshop programs.Its research portfolio includes the CONQUER longitudinal registry, GRASP study of disease biology in African American patients, and the CONQUEST Phase 2 platform trial in systemic-sclerosis-associated interstitial lung disease.

Systemic sclerosis and localized scleroderma, including autoimmune inflammation, excess collagen deposition, fibrosis, extracellular-matrix remodeling, vasculopathy, and organ injury.

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Longevity Biotech Fellowship

Source date not recordedAnalyse record ↗

Legally: Less Death. Combination of On Deck Longevity Biotech program and lessdeath.org.

Focus area
Community building fellowship program for people to build, join, or invest in longevity biotech projects.
Founded
2022
Legal status
charity (501c3)
501(c)(3) ruling year
2022
Staff
4
EIN
88-1048004
Seeking support
donate
People
Mark Hamalainen, Nathan Cheng, et al.
URL
www.longbiofellowship.org